Abstract
The rise in the measured prevalence of autism has been accompanied by much
new research and research investment internationally. This study sought to
establish whether the pattern of current UK autism research funding maps on to
the concerns of the autism community. Interviews and focus groups were conducted
with autistic adults, family members, practitioners and researchers to identify
their priorities for research. We also captured the views of a large number of
stakeholders via an online survey. There
was a clear disparity between the United Kingdom's pattern of funding for autism
research and the priorities articulated by the majority of participants. There
was general consensus that future priorities for autism research should lie in
those areas that make a difference to people's day-to-day lives. There
needs to be greater involvement of the autism community both in priority setting
and in research more broadly to ensure that resources reach where they are most
needed and can make the most impact.
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