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Friday, August 1, 2014

The Language of Autism: Disease or Difference?

“Our desire not to be rhetorically dehumanized is not a type of hatred or guilt or stone-throwing,” wrote Ibby Anderson-Grace, an autistic scholar and advocate. “It is a natural reaction to hearing the type of person you are, or the type of person your kid is, talked about in ways that seem to suggest not being or counting as a human person. How do you know Finn won’t read that the way you and your wife claw at each other is all his fault because he is not really a person?”

Finn read? The thought had scarcely occurred to me. Not long before, we had been told that Finn, now 6, had the cognitive age of an 11-month-old child. But things have changed since I first wrote about Finn; he used to point to an object he desired, his one concrete method of communication. Now he uses American Sign Language for music and movie and dog and shoe and food and drink and up and help and stop and wait and candy. He is beginning to shake his head for no and nod for yes, and when I look into his eyes I see now that he loves us as fiercely as we love him. He only rarely bites us anymore, or wraps an angry hand around his sister’s hair.

So who knows what’s in store?